My (possibly) last IVIG occurred yesterday. It was horrible. The first vein tried blew, and was a 10/10 in phlebitis pain for 10 minutes. I cried. Amy never sees me cry. The second vein did what it was supposed to and blew at the end.....another high scale pain level.
Thus far I have been a trooper and plan to continue. Phlebitis has, and always will, bring me to my knees. I consider it more painful than appendicitis or a broken arm (I have had both). Yes, it's that bad. My veins are very angry and tired of infusions. I can't describe it....it's just terrible, horrific vein pain.
In looking on the bright side: I'm glad it happened. It reminds me why I am here, and that phlebitis would be a lifelong alternative (every two weeks).
Thank you Amy for being here...and for getting me to giggle throughout the day. Xoxo