Friday, July 31, 2015

Day -3: repeat yesterday and new digs!!

Today repeats the same schedule of the last two days.

I transferred to my new room on the 16th floor along with my stem cell family last night. Turns out it's the same room I had for mobilization (the first dose of chemo some weeks ago) same nurse today and same tech. They both remembered me, Chad and our conversations about San Francisco. I sadly, do not.

But it was nice to take out the decor now that I am in my permanent room.



My smile wall

More smile wall








Chemo has taken a toll on appetite. Weight is down (not complaining) but there are a few staples I know I can stomach.

Also was informed i am getting ivig Monday (my atem cell bday). Cidp is fighting back so I'm having issues with tremors and strength on my right side.
They want to.waitnuntil the chemo and rATG are through before they add another infusion.



In lieu of walking laps (I am a fall risk) I walk to family room and do 2 mi/16 min on the bike. Did  that twice  today which led to a 2.5 hr mid afternoon nap. Not a bad view from the bike.









By 8pm i was feeling wiped, decided to nap before the 11pm meds that make me pee out chemo for an hour. But then they came to do vitals and my bp is low and my hr is sporadic. So I wait instead for an ekg. I may end up with a halter hr monitor for a few days. Apprently chemo can cause this. Better safe than sorry.

Still going to attempt 80 min of shut eye before midnight meds. Then hopefully 3 hours of sleep tonight and another nap tomorrow. The weeks impact does seem to be fatigue for me. All I want to do is sleep.

Signing off for now.


8 comments:

  1. Loving the banner and the smile boards. Looks great. Sensational view. You might have to give Beuford a photo with that view in it. Just beautiful. Get some well earned rest Hun. Always thinking of you. Gentle hugs, much love xxx.

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  2. I love the smile wall pics. Thank God for sleep. Rest up well for the fight my dear. We love you!

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  3. I love the smile wall pics. Thank God for sleep. Rest up well for the fight my dear. We love you!

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  4. I love the smile wall pics. Thank God for sleep. Rest up well for the fight my dear. We love you!

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  5. You are fierce! Xx

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  6. Love your smile board! Praying for you 💜

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