|rockin the shortdo|
|bananas and lysol|
Ola has done a great job making sure I stay hydrated, pain free and without fever. The neck catheter wound has really been bothering me so she makes sure the pain level doesn't get out of control
I feel like the spark was back today (Saturday) as can be witnessed in above "lysol" photo. Had a visit with Eleni at the hospital today. She is on Day +4 of transplant and may be discharged anywhere from 4-7 days from now. I get admitted Tuesday so we may just miss each other inpatient. We forgot to take pics of the visit....but we had a lot of laughs. She is my Greek sista from Jersey and she is hilarious. She is fighting MS like a boss.
Sorry E, I stole a picture from your FB page! Her and her mother Helen are precious to me
Eleni and I made a joke about the fact that my hair has hung in strong, I'm now on day 15 with no sign of it bailing.......not 30 minutes later did I run my fingers through it and get a handful. So Ola and I decided to have some fun a dye it my CIDP foundation colors before we shaved it off.
|my hairdresser (Ola)|
|GBS/CIDP Foundation colors|
|i kinda like it|
|love the hawk|
|baby steps in fun|
Ola leaves in the morning. Thankful she took time away from her family to help me out. Looking forward to my big brothers arrival tomorrow. A man I so look up to and am honored to be related to. I am so humbled he is also taking time away from his family to support me. I look forward to being more active with the beautiful niece and nephew he gave me, once I'm back on my feet.
|thanksgiving 2013 - before diagnosis|
The support thus far has been overwhelming. Whether in person, by phone, text, or email I get emotional just thinking about it. Thank you all for the love, prayers and support. The posts may become more sparse as I start the inpatient journey, but will do my best to keep the updates coming.
Monday: PICC line placement in my arm. Finish packing for hospital
Tuesday: 7am admit to Prentice, until release date mid-August.