Last night was rough, but in a good way. My shin bones , skull and jaw were in a steady 6/10 pain scale with meds. When I woke up to the good news absolutely everything hurt. Legs, arms, sholders, spine and skull. Not much sleep and I am ok with that.....this is a good pain. Engraftment hard at work.
We dont yet have the neutrophil number back yet, but that also needs to be high enough for me to leave. I'm also short of breath so I may get some blood to replenish my hemoglobin.
Whether I am discharged today or tomorrow doesn't much matter to me. What I do know is I wll be home Saturday, and that is all that matters.
My wonderful man sent this to me today. Quite fitting.
I took this from another persons facebook wall......
Once more I find myself thanking all of you. You are my friends, family, and members of my support groups. I have made new friends through inheriting CIDP that I so adore. So many blessings came out of this curse that its hard to sit around and be a victim.
I stood. I fought. I won.