Friday, August 14, 2015

Day +11: One more sleep until home

I was discharged Wednesday evening. Have been resting in the hotel for a few days. I'm headed home Saturday. Home Sweet Home.

The overflow items have been shipped home. We start to pack the luggage for the airport this evening. Carefully packing the carry on bag with all the post-HSCT necessities. Can you say hand santizer?

We have been watching either the Blue Angels or the Brietling Jet team practice from our hotel room. Chicago has their annual air & water show here tomorrow.

It's bittersweet leaving Chicago. I adore this city, it has given me a new lease on life. That being said, I miss my home, my love, my dog, my friends and my family. I'm hoping we have an on-time smooth flight home.

Once back I begin the roller coaster of healing. There isn't a gradual wellness that comes post HSCT. I have been told to expect the days that feel like a relapse. Lots of patience and calm will be required while I let my body do its thing.

My baby brother comes in this weekend to spend my first week at home with me. We have blood labs and physical therapy appointments. It will be reassuring to have someone with me that first week while I gauge my strength and stamina.

Thanks again for all the love, encouragement and support. While the procedure is behind me there is a lot of work left in recovery. I will be working hard and making you proud.


  1. Yay - so glad you are on the "home" stretch (pun intended). Yes, you have a ways to go, but you are such a warrior and I know you will come through this stronger and perhaps with curly hair - or as a brunette? Missing your face!! Love you.

  2. You've already made us proud! You don't have to DO ANYTHING for us, you big goofball, this was all for you, for you to have a better quality of life now and later down the road! You invited us into your journey which I am ever so grateful for! Let us know when you are ready for some "lite" company! Have a wonderful journey home! More virtual hugs!!!!

  3. One more sleep...........just one more sleep

    WOW! You've come such a long way Hun. Yes, you've still got some way to go, but you're on the journey of your lifetime. I smile just thinking of the new life you're embarking on - the things you'll be able to do once you've healed. Ain't gonna be no stopping you now. You have such an amazing life ahead of you and you deserve the best the world has to offer

    Those of us who have had our run ins with GBS & CIDP will be walking the road ahead with you. We'll have the Jim Beam Rest Stops set up along the way. We could all get a bit "ugly" by the time we reach our destinations. :)

    Safe flight back to California gorgeous girl. It's been quite a journey.

    Big hugs, much love xxxx