Jodie arrived yesterday and stays until I'm discharged. She helped me organize the room and finish some laundry. She got to try chicken Pho for the first time last night, she loved it. It's one of my favorite things in the world to eat. There is a great Pho place very close to the hospital.
Counts this morning:
Labs are typically pulled around 3am. That way the doctors can put in orders for the day: potassium,
blood, steroids etc. The team pulled labs again in the afternoon today (4:30) to see if there is any
nudge in the white blood cell count. It gives them a better idea of when I might be discharged.
Current count is TLTC (too low to count). We may see them jump to 0.1 or 0.3 and then up from there. It's all a waiting game at this point.
My worst symptom today is a skull ache....most likely bone pain. They keep offering me migraine
meds, but if this were a migraine, I wouldn't be able to tolerate the light from my window and I'm
enjoying that just fine.
A really exciting update is my symptom improvements:
-hand tremors: gone
-head tremor: very seldom
-nerve pain in right leg: gone
-pain at the bottom of my feet after walking laps: gone
-fatigue- tbd. I expect post transplant fatigue for a few months post.
My happy face:
|Chad says I look like an emperor|
The biggest symptom that remains and is actually worse than when I came in, is the numbness is my feet and calves. However, this can actually be a sign of healing. Time will tell for now, but we decided not to do any IVIG while I'm here. When I get home I will keep in touch with the team at Northwestern as well as my transplant nurse assigned by my insurance. They are willing to order IVIG once I'm home if I feel like I need that final dose to help with healing.
Afternoon lab results: DRUM ROLL PLEASE
White cells jumped to 0.2!!!!
This is good news! I'm engrafting!! Once that number hits 1.0 I'm outta here!!!
Can you tell I am excited??