Saturday, August 1, 2015

Day -2 : last heavy chemo day!

Its a beautiful Saturday morning here in Chicago and I completed my last mega dose of chemo (Cytoxan) and rATG today. Which is very emotional. I am over the hump of the intense fluids, steroids and flushing every 6 hours. When Nick fist-bumped me, it hit me.

The chemo is catching up with me. Less energy, weak, poor appetite and a headache. My hands and feet are severely numb and very weak. It has taken quite the effort to type this today. I managed to get on the exercise bike just once today to help with the fluid swelling in my feet.

Its a beautiful boat filled day on Lake Michigan.


Taking it easy and watching movies with my big brother. Seven psychopaths is highly recommended. It sounds bad but it's actually funny. Anchorman 2 had me laughing too. It was actually hard to laugh my body is so tired.

Good news is that the BP and heart issues all ruled out. they cut back on running Lasix and Ativan so close together sine they  both lower blood pressure and everything resolved. Dr. Burt came by today and said "you're doing good". So there's that.

Blood counts are dropping quickly as expected. I'm sure that plays into the fatigue.


Tomorrow I just have rATG (rabbit antibodies) to further suppress the immune system, so a quieter day.

My stem cell birthday is Monday, and I get IVIG as well, which I'm hoping might help boost strength and energy as it usually does.

Thanks for the  calls, emails and texts today. There was a lot of resting today that kept me from keeping up with it all.

More tomorrow.


6 comments:

  1. Keep plugging away gorgeous girl. That home straight is most certainly in sight now. You're just about ready to run into the stadium for the all encompassing last laps. You'll hear the crowd cheering at their first sight of you. I'll be standing there waving the pom poms like a woman possessed. You've so got this. Gentle hugs, much love, as always.

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  2. I am so proud of you. You are a brave one my sweet girl. I hope you get some relief on monday. Xoxo

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  3. I am so proud of you. You are a brave one my sweet girl. I hope you get some relief on monday. Xoxo

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  4. I am so proud of you. You are a brave one my sweet girl. I hope you get some relief on monday. Xoxo

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  5. Hang in there Stephy!! Sending lots of virtual hugs your way. XOXOXO

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  6. I am soooo happy for you and yes a wee bit jealous - but that's another whole story!! Yes I'm am researching new doctors and providers because Kaiser just sucks! After all, I learned from the best - You - right???

    You've had amazing "sitters" and I am very glad you've had that company. I would have given my right arm to be there with you. (Get it, right arm? Lol). Nothing like good friends and family!

    You've made it over halfway and I am so proud of you and happy you've been able to keep up the humor too!. Its very helpful to deal with this shit with humor even when you don't feel like it. At some point CIDP will know its been whipped and give it up! Then you can come home to all of us who love you so dearly! Many kisses and virtual hugs!!!!

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