Day -1 : toward the healing phase

No more harsh chemo today, no more chemo flushing medication, IV fluids stopped. Just some rATG to further suppress the immune system. It's clearly working by the looks of these numbers.


What that translates to: fatigue. Those of us with CIDP know horrid fatigue anyway but this is even deeper. You need a nap after a shower, after a walk to the bathroom...everything just takes so much energy that one does not have.

The blood counts today:

CIDP knows it's being evicted and has decide to retaliate. My right hand is practically frozen, it's very numb. Writing is comical. Right foot feels like a wood log. Left side still has its standard numbness but the right side is really taking a hit. Hard to hold a toothbrush, phone, anything. I've asked dr. Burt to provide me IVIG tomorrow for my "birthday" (stem cell bday) so we will see if that un freezes my hand and returns some strength. In general these days  my legs are very weak and like to buckle on me.

Had a fun episode this morning, sitting up enjoying a movie, suddenly overcome with dizziness, dry heaves, and my skin felt like it was on fire. All vitals were fine, so we used fans, ice water, cold wet towels and some neck rubs....these nurses and aides are awesome. Dr. Burt was paged and said to give me some more fluids, All resolved after about 45 min.

Got a nice dose of benedryl to help relax me and I got a 1.5 hour nap. Yay!

Taking it easy today. Preparing for the big day tomorrow, there will be lots of pictures. Excited to get the stemmies in my body to start repairing.

The care here is amazing. I can't say enough good things. Dining on call is another story. Thank god for brothers who walk to trader joes or the Galter cafeteria and need I forget grub hub delivery!!

This morning's sunrise was unbelievable. The colors were amazing.