Monday, September 14, 2015

Day +42: Roller coasters and peach fuzz

I couldn't MAKE UP the events of the last week, it's rediculous to be honest. The good news is that I feel really great today so I will be focusing on that wonderful gift.

Early last week I had a fall while carrying in mail. I stepped into the house with my weak leg, and it decided that it was not interested in carrying my body weight. Down I went. No injuries, just quite a scare.

Later that same evening Duke got skunked. My whole house and my dog reeked. My lovely beau came over to help me bathe the poor dog, and in doing so I fell again. Only this time, it was ungraceful, violent, and left marks. My knee, shoulder and forehead took the brunt of the fall. Head has healed, but I think the shoulder may get added to the PT workout list.

Luckily the next day I was able to get a ride (thanks Dad!) to my pet store that has a bathing station. Duke now smells more like a petunia than a wild critter I mostly associate with a cartoon when I was a child.

The whole week I was battling some breathing issues that started the previous Friday. My doctor called in an albuterol inhaler for this past weekend to see if it helped. Not so much. I am being referred to a pulminologist and they want to see me this week.

Every few years I experience a temporary (allergy or illness induced) asthma event. Typically after bronchitis, sinusitis or bad allergy season. However albuterol has always helped me, so this is a bit of a mystery. I'm wondering if the fire smoke in the air is a trigger. I just spent three weeks in a HEPA filter bubble at NorthWestern. Perhaps my lungs are not ready to go back to reality.

My hematologist said my labs have been excellent and my blood has shown a strong recovery. With that comes some small restriction lifts. I don't have to be so "bubble" focused, just cautious. Already sent a bolo out to some girlfriends to come pick me up and sit with me outside somewhere that isn't my house. I'm getting a wee bit stir crazy to be honest.

The beau and I did a toe test the other day. I now can feel the touch on 3 of my 5 toes on each foot. This is kinda a BIG deal. Not getting my hopes up, but hoping it sticks around. It really is quite helpful to feel your feet and toes. I still experience a lot of nerve pain and cramping in both feet, but Alpha Lipoic Acid and my homemade coconut oil/tea tree oil rub seem to be helping at night so I can sleep.

By mid week I also noticed peach fuzz on the noggin. My hair did grow fast before, and my hematologist said it would continue to grow fast. Sunday I noticed some long "ostrich hairs" that are growing past the peach fuzz. We shall see what is growing a month from now! Hoping for at least a 1/2 inch a month.


Knit  hat from my Auntie M......

Woke up today feeling good. I have been strict with my PT regimen and just added some modified Pilates. I can't do all the moves, but what I can accomplish really help with my balance and leg strength. I also got approval from Chicago to do rehab in a pool at a rehab facility. We can't do public pools or the ocean for a year I think. Walking laps and leg workouts in a pool alleviates two of my challenges: nerve pain in the feet and balance/falling. All the while getting stronger and building up my endurance. Unfortunately I cannot find a single pool rehab facility within 20 miles of me. If you know of one, let me know.

Received this gem of a card from my Product team at work.  I laugh every time I look at it. It's on the fridge, forever.


Scrabble is a frequent activity. This was my luck the other night. Really!? Ended up passing my turn to dump some letters.


  1. Yeah on the toes!! Sweet!!! You are welcome to use my pool if its acceptable. Its not public and not a rehab but its closer than 20 miles. If works, I'm home every day, but if its not, I'm not hurt. So sorry on the falling, its very scary and I'm was hoping you wouldn't but now that you have, you check that off the list! Give me call whenever you want to get out! I'm here for ya!

  2. You are a rockstar, Steph! That must be scary when those falls happen. Used to happen to me a lot too, mostly because I was hammered. I love you and am rooting for your best health and happiness!

  3. Keep your head up doll! I am just in awe of you.